I came across this interview with Jo Whiley, whose sister has Cri du Chat, a genetic syndrome involving chromosome 5. She talks with honesty about her parents’ experience of caring for her sister, and what life was like growing up as the able-bodied, neuro-typical sibling of a girl with quite complex needs.
I commend the work that Jo is doing with Mencap. Her approach to changing attitudes toward disability is straightforward, honest and direct. She is out there in the mainstream talking about it. Exactly as it should be. So why this wonderful interview is hidden away in the ‘Talking about Disability’ section of the Guardian website I do not know.
C’mon Guardian, you know this deserves more profile: